Transitioning Treatment Responsibility

It’s important that as the person you care for gets older, he or she is able to take care of all aspects of cystic fibrosis (CF) treatment.

As the person you care for gets older, here are some suggested guidelines for transitioning responsibility.

Encourage your school-age child to:

  • Learn what CF is and how it affects the body (in basic terms)
  • Have a basic understanding of what each of their medications and therapies does
  • Understand their treatment schedule
  • Begin to learn how to do airway clearance therapy with your help
  • Keep asking questions to learn more about CF and its treatment
  • Be able to recognize symptoms of potential side effects of medications and keep you updated about how they're feeling

Encourage your pre-teen or early teen to:

  • Learn what CF is and how it affects the body
  • Recognize the names of all their medications and therapies and what each one does
  • Understand their treatment schedule
  • Learn how to do airway clearance therapy with your help
  • Avoid peer pressure to try smoking or other things harmful to their health

Encourage your older teen to:

  • Recognize and name the various symptoms of CF
  • Become responsible for keeping track of clinic visits
  • Manage their medications and know when they have to be reordered
  • Talk to their healthcare provider about symptoms and overall health
  • Maintain equipment such as nebulizers

Encourage your young adult to:

  • Contact their healthcare provider directly about changes in health
  • Manage their own clinic schedule
  • Refill medicines without your help